- New #raredisease blog: The best part of my job now live! By Program Manager, Alexandra Freitas! http://t.co/5f8HWZFE2t
- There are nearly 7,000 #rarediseases, of which only about 350 have FDA-approved treatments, affecting nearly 30 million Americans.
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About NORD Footer
- NORD is a unique federation of individuals and voluntary health organizations dedicated to helping people with rare diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment and cure of rare diseases through programs of education, advocacy, research, and patient services.
- 55 Kenosia Avenue, PO Box 1968, Danbury, CT 06813-1968 | (203) 744-0100
Support The Guides
Ways to Support the Guides
These guides are made possible by educational grants from patient organizations, foundations, and companies. NORD is solely responsible for the content.
Sponsor a Guide
Individuals or organizations interested in funding the creation of a guide on a particular topic may write to: nordphysicianguides@rarediseases.org.
Contribute Content to a Guide
Medical experts who would like to contribute information for possible inclusion in an existing Physician Guide may write to nordphysicianguides@rarediseases.org.
Donate to the Project
Individuals or organizations who would like to make restricted donations in support of this educational endeavor may contact NORD at (203) 744-0100 and specify that their donations are for the NORD Online Physician Guide project.
How to Partner With NORD to Create a Guide
When a grant is received to create a guide on a particular topic, NORD identifies an appropriate medical expert and works with him or her to develop the content. The initial draft then goes through a process of review before being posted on this site. In addition to the basic text, it is possible to include other features such as various graphic elements. When a new guide is posted, NORD will conduct outreach to appropriate audiences to announce the new offering.