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Welcome to the official rare disease educational website developed by The National Organization for Rare Disorders. By raising awareness of rare diseases among physicians, clinicians and other medical professionals, NORD strives to help patients obtain earlier diagnosis and appropriate treatment. Learn more >
Rare Disease facts
A rare disease is one that affects fewer than 200,000 Americans at any given time.
According to the National Institutes of Health, there are between 6,000 and 7,000 rare diseases affecting from 25 to 30 million Americans.
Approximately 50% of the people affected by rare diseases are children.
Since 1983, more than 2,200 rare disease treatments have entered the research pipeline and more than 360 have been approved for marketing.
NORD is a unique federation of individuals and voluntary health organizations dedicated to helping people with rare diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment and cure of rare diseases through programs of education, advocacy, research, and patient services.