NORD is a non-profit organization established in 1983 to improve the lives of individuals and families affected by rare diseases. It provides programs of advocacy, education (for patients and medical professionals), and referrals to resources.
NORD also provides Patient Assistance Programs to help patients gain access to needed treatments. These programs, which vary from time to time, are listed on the NORD website (www.rarediseases.org).
In addition, NORD administers research grants to encourage the study of rare diseases. These grants are funded largely by patients, their families, and patient organizations. View funding opportunities on the NORD website.